Vera.
I call Control.
‘I was just wondering how many ambulances Vera
has had today.’
Control doesn’t have the information to
hand. Which is surprising. Vera is so prolific, you’d think they’d have a big
portrait on the wall, where the eyes flash when she calls and a big electronic
counter flips round.
We don’t run red to the job, because in all
conscience we do not want to put any other road users at risk unnecessarily. We
probably miss the Category A time, which in auditing terms makes whatever
happens next a failure, but then of course everything about this job is a
failure. One frail old woman, the resource profile of a major incident, money
wasted, nothing done.
Even if a multi-discipline meeting between
health, social services and the housing trust cost a couple of thousand to
organise – even if they held it in the plushest hotel with the finest coffee
and biscuits, free gold pens and a table magician – if they finished the day
with a handshake and a workable solution it would still represent a saving of hundreds of thousands.
But if there’s one thing Vera is good for
it’s to demonstrate the fatal lack of continuity in the system, the lack of resolve
between the various agencies. Despite being a prodigiously expensive irritant
to everyone from the carer to the local GP, Vera still gets endlessly wheeled
around and around, insulting and assaulting and goading and absorbing and
causing havoc as she goes. Defiantly untouchable.
Vera is sitting in her chair watching TV:
Fiona Bruce investigating the life and works of J M W Turner.
‘I’m in pain! I’m in pain!’ says Vera, over
and over, but her eyes remain as hooded and watchful as they always do, her
hands placed lightly on the arms of the chair. Vera has three distinct voices –
the first and most used is a piping-falsetto for pain and distress; the second
is a lower, huskier tone for threats, insults and instruction, the third is the
least often heard - a wheedling kind of whisper, for saying how sorry she is. She
seems to use each voice instinctively, blindly sensing the advantage in the air.
She is like some malign porcelain doll, playing through her voices on a loop
until she gets what she wants.
She looks sideways at me and says in Voice Two:
‘Don’t you mess my sofa up.’
The carer is trembling, red in the face, putting
her coat on.
‘The other ambulance crew only left about
half an hour ago. They’d talked to the out of hours doctor and she’d arranged
for a visit later on. But then Vera picked the phone up again. What can you
do?’
‘Unplug it?’
The carer smiles as best she can and then
shrugs. ‘She threw a can of coke at me, you know.’ she says. ‘Anyway. It’s all
logged. Do you need me for anything else? Only I’m behind on my calls.’
She leaves, with a grim, backwards nod to
us from the hallway as she closes the door.
We turn our attention to Vera.
‘I’m in pain! Help me! You’re not doing
anything!’
‘Where are you in pain, Vera?’
She flutters a hand over her middle.
‘My chest. Around my heart. My legs. Help
me!’
Rae picks up the last ambulance sheet to
read what actions they took.
Fiona Bruce is in Margate. Apparently
Turner had a mistress there. She holds up an old photo, and points to a house
marked with an X.
‘Turn that off,’ says Vera. ‘It’s my TV.
Turn it off. This is my house. Get off my sofa.’
As she talks she reaches to the table at
her side and another can of coke.
‘Don’t you be throwing that, now,’ says Rae,
lowering the ambulance sheet. ‘I’m serious, Vera. If you throw your coke at us
we’ll have the police here to arrest you for assault.’
Vera withdraws her hand.
Voice Three: ‘I wouldn’t do that. You’re such
kind people. I wouldn’t hurt you.’
‘Didn’t stop you throwing it at that poor
carer, though, did it?’
‘I’m in pain! I’m in pain!’
She carries on crying out whilst we decide
what to do. The most common way of dealing with Vera is simply to load her up
and take her in. It’s the most emotionally aerodynamic method. Everyone has
attempted to go down other routes, but it gets more and more tortuous and
anyway the outcome is always the same – another call from Vera, another
attendance. The dull, default position is that if emails, phone calls and
reports are ineffective, maybe constant appearances at A&E will inspire
some other more definitive action. But it’s the beginning of the shift, we’re
fresh and optimistic and still up for an attempt at the right thing to do.
Rae calls the out of hours service. The
doctor tells us not to take Vera into hospital. Someone will be with her in an
hour or so. I call Control to log the discussion and our visit, but the
Dispatcher routes us through the Duty Despatch Manager, who refers us to the
Duty Com for a discussion about the implications of the call. The worry is that
Vera may actually collapse with an MI or something, and as the last clinician
contact, we’d be liable. After all, Vera is
complaining of chest pain. It might be
real this time. Her ECG does show some anomalies, the kind of thing you might
expect to see in an elderly woman, but still, not perfect.
‘Emphasise the concerns you have about her
mental capacity,’ he says. ‘We’ll log everything and see if we can sort it out
in the morning.’
Fiona Bruce is standing on the sea wall at
Margate, holding up a laminated copy of one of Turner’s paintings, trying to
identify the landmarks.
I glance across to Vera. She has the phone
in her hand. Whilst I’ve been chatting on the mobile to Control and Rae has
been writing up her sheet, Vera has dialled 999 again.
‘Yes, I know, we are still here,’ I say to
the Duty Com. ‘I think she’s going for a record – how many crews she can fit
into her sitting room at the same time.’
We take her in.
*
Behind the nurse station at A&E majors,
the bed board is as busy as the Tote on Derby Day . Our arrival with Vera is
greeted with a dismay bordering on hysteria. It transpires Vera currently has
an ASBO served on her for racially abusing staff, the result being that only
white Anglo-Saxon nurses can attend to her. As a political move more than
anything, we’re bumped round to minors where there are fewer BME staff working
tonight.
The nurse running the desk there is dabbing
a tissue at her eyes and nose.
‘Shall I give you a moment, Stacy?’
She looks up and smiles sadly.
‘Nope. No. I’ll be okay. Phew. Now. How can
I help?’
‘I can’t tell you how sorry I am to bring
this patient to you.’
‘Who? What do you mean?’ she says,
straightening a little.
‘Vera.’
‘Jesus Christ!’
For a second she flames as brightly as a
roman candle. But the white heat of her anger almost seems to cauterize the
sorrow that was overwhelming her a second ago. She takes a deep breath; her
fire burns blue and cold. She reaches up and gently brushes a strand of hair
away from her forehead.
She calls out to a young HCA called Steve, one
of only a few staff in the department who are able to deal with Vera.
‘Guess who’s in again,’ she says. Steve
slowly puts down the sheets he was carrying, and walks over.
In the A&E reception I get some stats:
one hundred and seventy five A&E attendances this year alone, which necessarily
means at least double that in ambulance call-outs, five of those tonight. We
drive back to base to complete the paperwork – an untoward incident form, a vulnerable
adult form, supporting emails and faxes – any angle we can think of to raise
Vera’s profile and get something done. Three hours start to finish. We have a
cup of tea, realign ourselves with the night, and carry on.
*
Half an hour before the end of the shift,
we get our final job.
Exhausted, we make our way back into the
cab. Read the MDT.
Vera.
Rae drives.
There’s no conversation, none at all when
we turn up at her flat. We are clinical operatives, delivery people. We put her
in our chair, load her onto the ambulance. She toggles through all of her
voices, desperately looking for an angle, a point of leverage, but we are cold
to her.
The department has pretty much emptied when
we go in through the automatic doors.
A black cleaner working his broom in tired
loops.
A Filipino nurse.
18 comments:
I've read all of your posts since I first discovered your blog, Spence. Some of them have made me laugh, some have brought tears. Many have depressed me. I think that this one is possibly the most sad, depressing and helpless one of all.
Kia kaha.
Hi Alexia
Well - there are so many sad and depressing aspects to this particular story, it's hard to know where to begin!
At the centre of it all: Vera, a lonely, confused and at heart quite embittered individual, I think, who has fallen into this awful pattern of behaviour and doesn't seem able to break out of it. I know it doesn't bring her any pleasure. I just wish there was some way of helping her out of the loop. But at the moment, she's been tested for mental capacity - and passed - so there's no quick and easy solution.
She's surrounded by caring and well-meaning people. Although it's also true to say that many have turned against her over the months (and years), worn down by frustration and plain tiredness.
She's getting worse. Her racist behaviour is just another facet of her tendency to look for ways to cause trouble and wind people up - but having said that, of course, it's completely unacceptable and deeply unpleasant to witness. Ultimately I think she'll fail the competency test and be transferred to an EMI unit or similar. Which might actually improve her chances of happiness. It would certainly be more cost effective.
It's probably not a good article to write fresh off a series of nights! Your light burns a little lower until you make the adjustment.
I promise I'll make the next one more upbeat, Alexia! Thanks for reading all this time (and commenting).
Hope you're well.
SK :)
Fantastic writing as ever Spence. I work on the frontline of accounting (m'noh yes) so it's always good to read something of the real world, as frustrating and painful as that might be.
Gee whiz. Why on earth has the aforementioned multi-disciplinary team meeting not happened?!
It seems unbelievable that she could be given an ASBO, but not have this incredibly challenging behaviour pattern addressed.
In general, I deplore day centre type services - they're overused, tend not to meet individual needs well and erode choice and independence - but Vera needs not ever to be left on her own, or find herself with nobody to talk to... and some sort of day service could help a fair bit, there.
A champion of manipulation...
There is,of course,the chance that eventually Vera will see the wolf.In the meantime however I'm going to revert to my default suggestion.
Rubber gloves,Davey Lamp,hose,clamps,monkey wrench,orbital sander.
"Now this may smart a little Vera...."
Thanks Baglady!
I can imagine Accounting being a good job, though. My sister in law's an accountant. She used to work for a big firm, but then went self-employed, helping local businesses in her area &c. It'd be great to have a skill like that. I can drive, balance a broom handle on my chin and that's about it.
Becca - Absolutely NO idea why this meeting hasn't happened! The whole scenario is completely unbelievable - which is another reason why Vera's particularly difficult to handle. I agree about Day Centre activity. I'm sure it's been put her way (but I'd bet the Day Centre barred her from attending for obvious reasons).
Jacks - When Steve the HCA was helping us transfer Vera to a trolley, I asked him if The Sopranos really existed, and if they did, would he have their number. It transpired that Steve is actually a huge Sopranos fan (like me). He's even been to New Jersey and been on a Sopranos tour (which would be interesting if a little nerve-wracking - esp. a visit to Satriales Pork Store).
Thanks for the comments... :)
What an impossible situation. As much as I deplore the waste of money, services, time etc. Vera has caused, I can't help but feel sorry for her. She must be so lonely, if all she cam think.of is to phone 999 constantly. I do hope something can be done.
I have been reading your blog, Spence, just not found the right words to comment!
Petrolhead
Hi Petrolhead
I feel sorry for Vera, too (when I'm not actually in the same room...) I think Vera's been let down by the system, just as we all have. I have to say that for a system that's supposed to cover all eventualities, it's strangely inflexible.
I have no idea why she behaves like this - but then, I'm not sure she does, either. It's just a terrible pattern of behaviour she's fallen into that superficially gets attention. Ultimately, I don't think she's happy - and it's a copper-bottomed fact that no-one providing her care and support are happy, either. Someone, somewhere needs to grasp the problem and find a solution. An ambulance crew? Well, we've tried! But when nothing gets done, all that's left is to make yourself into a resilient and self-protective little ball and bounce, bounce, bounce.
Thanks so much for reading the blog all this time, PH. I appreciate it. And I don't mind if you don't comment. It's good to know you're out there...! :0)
Here in Lubbock, TX, USA, we have the same problems. I'm just a resident in an apartment complex for 'older' folks, but there's always one or two who get lonely and call for EMS, when they could go out into the common area and visit. But then they wouldn't be the center of attention, would they? So sad.
I couldn't comment when I first read this - too frustrating! And I don't even have to deal with her.
I hope writing about it helps you cope. :)
Hi Steve
I'm sure loneliness is a factor. But then Vera does get carers four times a day, plus a friend who visits pretty much every day, so that's quite a lot of attention already. Her calling for the ambulance seems to fly in the face of all reason; I'm not sure she could explain why she does it. It's a bad habit, and she needs breaking out of it. How, I don't know - beyond our scope of influence, anyway. All we can do is keep reporting our concerns / turning up / taking her in. Hrrmph.
Hey Tpals
Writing about it does help - I can feel a little more objective about the whole thing. There was that other time I wrote about Vera where I just threw myself down on her sofa and said something like: this can't go on!. Utter despair. Esp. in the early hours when you're fund of patience is decidedly overdrawn. Who knows what will happen? (But it's quite plain what a lot of people hope will happen...) Not a nice situation, when her final years could be happy and productive.
Thanks for the comments.
There must be a Vera for every ambulance service in the world.
Heartbreaking, infuriating, mind-numbing, threatening, frustrating, all at once.
And then some...
Great writing as always.
One of the most infuriating aspects of the case is the feeling that if someone really focused their attention on her, really looked into the reasons why she's behaving like this, a solution could be found. I think it makes good, practical & financial sense to target Vera and people like her - and I'm completely confused why it isn't happening!
Cheers Insomniac. Hope things are good with you & yours.
She really reminds me of someone with a personality disorder, possibly Borderline or Dependent, which usually improve with age, but in her case hasn't. The desperate or compulsive need for attention, possible fear of abandonment, manipulation, threats, and mercurial mood shifts. Absolute hell to deal with.
That's an interesting reading of Vera's situation, Wynn. It sounds spot on - esp. that bit about being hell to deal with!
Hi spence, we have a Vera in the care home, boy can she test the patients of a saint!!! I have a lot of time and patience for ppl, especially with dementia, but her..... but you have to be professional and I do feel sorry for her as she's such a nice kind hearted lady of 96. She does, however, take her meds, talk to the staff and behave impeccably when she has visitors!! Apparently she has capacity but maybe borderline dementia according to the experts.... hmmmmm we know different. And she's the same with the buzzer as your Vera is with 999....
Mental capacity is an interesting area, to say the least! Half the time you're left wondering if their behaviour is evidence of a lack of capacity, or simply anti-social behaviour! If Vera had been in a home, at least it would've given 999 a respite. Vera was such a huge drain on resources. I did feel sorry for her - when I wasn't dealing with her - but she was definitely one of the most difficult patients I ever dealt with (and that's saying something!)
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