We’ve been on scene an hour and Stephen has only made it from his
chair to the sitting room door, a distance of no more than three feet. Lack of
sleep and a low-grade virus has exacerbated his Parkinson’s leaving him weak
and unsteady. To make matters worse, his house is so cluttered with piles of
books, boxes of stuff, war gaming manuals and so on, his zimmer frame keeps
getting caught up. The only way we manage to get him to walk at all is to put a
hand behind alternate knees and encourage him to swing that leg forward. It’s
like manipulating an adult-sized puppet, one dressed in a towel robe, a khaki
green t-shirt with top gun on the
front in white letters, and a pair of sagging pants.
He pauses to say something.
‘Sorry, Stephen?’
He’s hunched over and speaks in such a slack and gabbling kind of
whisper the carpet gets most of it. Continually asking Stephen to repeat
himself is only slowing everything up even more; I try to simply relax and let
the meaning take care of itself.
‘You’d rather go to hell than hospital? Well I know it’s not a great
holiday destination, Stephen, but it’s the best place to go to get well again. We
can’t force you, though. I just feel very uncomfortable helping you up those
stairs like this. What happens if we get halfway and you decide you can’t make
it? That’ll make getting you out to the ambulance even more difficult.
Dangerous, even. And I know you wouldn’t want to put us in any danger, would
you?’
The prospect of hospital seems to galvanise him into making one
final, all-or-nothing attempt. He asks us to fetch over a narrower frame on
wheels. Using that and the puppet-method, we make the bottom of the stairs in just
under half an hour.
I’m ready to apply more pressure to get Stephen to give up and come
to hospital, but incredibly, once we’ve helped him onto the lowest step he
seems to find a new source of energy. He makes it up to the top in one headlong
motion, only stopping at the turn for a moment to get his breath.
‘Fifteen seconds up, ten seconds down, that’s the record,’ he says.
Or at least, I think he does.
We start shuffling towards the bedroom.
There are two enormously fat cats curled up on his bed – so fat, I
grunt when I pick them up to make room for Stephen. The moment Stephen’s tucked
up in bed, though, they retake their positions, one on the pillow next to him,
one on his legs.
‘I just need to sleep,’ he says. ‘That’s all. I was weak. These
things catch up with you. I’ll be all right.’
He moves his legs a little and the cat that’s taken up position
there, a panther-sized black beast with translucent yellow eyes, raises its
head and stares at him.
‘Look at her,’ he says. ‘Infested with aliens.’
And even though I
relax my mind till it’s positively upside-down, I still can’t get the gist.
4 comments:
Know the feeling of just wanting to get into my own bed to regroup and recuperate. You're a good man, Spence, and your crew as well. Hope my old age comes with helpful folks like you all.
Thanks, Lynda. He did have a carelink button and a carer coming in a little later, so that was some reassurance he'd be okay.
Sometimes the contrast between jobs you do in a shift is so extreme. The one before was a serious road crash, cutting a driver out of a car etc; this one was just helping a guy to bed very, very slowly!
I've done a house call for the last 15 years to a gent called George who suffers with Parkinson's.It's such an up and down illness.There are occasions when his carer will ring me to say he's not fit enough on the day and yet on other occasions he's absolutely fine.
What I can tell you without doubt is that it's a shitty illness.
Another on the long list of horrible, debilitating illnesses.
I'm glad in the end we didn't hassle Stephen too much about going to hospital. We'd had a busy day (shock horror) and it was difficult to stay with him that length of time, making such slow progress. But in the end he was right - it was the best thing. He needed a good night's sleep, in his own bed, and whilst I'd struggle to understand what it must be like living with such a dreadful condition, I can totally relate to that!
Cheers Jack.
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